As I look out the window of our ICU room this morning, the sun is shining brightly and the maple trees are beginning to turn a most beautiful shade of golden orange. A welcome change from grey skies and rainy days. Perhaps a gift for today, to lighten the burden we are facing.
Ethan’s neurosurgeon told us that the surgery went well. That he believes he was able to remove most of the tumour. Some had to be left behind because of the way it had grown so closely around some critical ventricles in his brain. Attempting to remove more may have subjected Ethan to permanent damage.
An MRI is the only way to confirm how much of the tumour remains. Once that information has been obtained, the team will be able to decide how best to proceed.
Thank you to those of you who prayed that the MRI machine would be repaired. We just returned now from having those images taken. It did not happen in the time frame we had hoped for, but perhaps there is a reason for the delay that is beyond our understanding.
Please pray for wisdom for Ethan’s doctors. That they will be able to accurately assess his condition based on the MRI images, and develop an effective treatment plan.
Please also continue to pray for Ethan’s recovery from surgery. Although he initially seemed to be doing well, his condition overnight and this morning has us worried. He had a mild fever overnight, as well as intermittent vomiting, despite being on medication for nausea. Some of that is to be expected after such a traumatic surgery.
However, it has also become increasingly difficult to get Ethan to respond. He will wiggle his toes and fingers when asked to do so, but it takes a lot of convincing for him to open his eyes. As of about 2 am, he was no longer responding verbally at all, however did whisper a “No” just now, when Trevor asked him if he was experiencing any pain. That certainly brought a smile to both of our faces.
As a parent, it is so difficult to see Ethan struggling this way. Especially when it seems there is so little we can do to help.
When I was praying for him this morning, I cried out to the Lord that this was too much for me. Too much for Trevor and the other kids. And definitely too much for Ethan. I sensed Him reminding me of the words of Isaiah 41:10,
“Do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.”
I will hold onto those words as my truth for today. I have no choice, really. I am not strong enough to endure this nightmare on my own. I will trust in His faithfulness to provide the strength He has promised, and to uphold me at this time when I need Him most.
From the bottom of our hearts, thank you for praying for Ethan and for our family. For those of you who do not share our faith, we understand. Thank you for being here to love and support us. Thank you for having the grace to let us be who we are, a family who trusts and loves our heavenly Father, even in the midst of a situation that defies all understanding.
Deepest gratitude and much love,